Mother forced to raise money for sons life changing operation

Theo-for-webA three year old from Hucknall, suffering from cerebral palsey, was due to have an operation that would change his life but the NHS has cut his funding.

 

Theo Hunt can only walk 20 to 30 steps with the aid of a walking frame and shuffles on his bottom the rest of the time. He was just one test away from having the selective dorsal rhizotomy operation before it was cancelled. The surgery would loosen the muscles in his body and help him to walk independently.

Cerebral-Now, mother Melissa, 28, is relying on the local community to fund a trip to America where he will have the operation instead.

“People in the area have been brilliant so far in helping us achieve our target. This morning I received a cheque for £200! Nobody can understand why the NHS have cancelled the funding, but he will still have the operation“.

 

Theo was due to have the treatment next month so he could start school in September. Unless the family can quickly raise over £30,000 to pay for the operation in America, he will have to start at a later date.

In total, 19 children with cerebral palsy have had operations cancelled just weeks before the surgery at Nottingham University hospitals. In response to CBJ’s enquiry about why the fundings been cut, James Hunter, clinical director for the musculoskeletal and neurosciences directorate at Nottingham University Hospitals, said:

“We reiterate our apology to the families and relatives for the upset and distress caused by the changes to funding arrangements. We are in contact with a number of families, whose children had been referred to NUH but a date had not been set for surgery, to discuss alternative arrangements.”

Melissa is now planning a number of events to raise the money, including a charity boxing match at the Forum nightclub next month. As well as providing financial support, she hopes events like this will help to raise awareness of Theo’s condition, which has had a massive impact on the family.

 

 

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